CARING FOR SOMEONE WITH LYMPHOMA
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WE’RE HERE TO HELP SUPPORT YOU AND YOUR LOVED ONE
Being a caregiver can feel overwhelming and scary, but educating yourself on options for your loved one can help make it easier. Learn more about Breyanzi®, CAR T cell therapy, as a potential treatment option.
WHERE ARE YOU ON YOUR CAREGIVER JOURNEY?
When is CAR T therapy right for my loved one?
You and your loved one have already been through the ups and downs of remission and relapse. It’s hard to hear that your loved one’s cancer has returned and even harder to navigate the right choices. But there is hope after relapse.
Read through the patient journey to find out more about when CAR T cell therapy may be an option.
“I couldn't have done this without my wife, Vanessa. When one has cancer, two have cancer.”
Helping your loved one navigate their treatment options can feel overwhelming, but having all the information you need at your disposal can help make it easier.
There is hope for remission after relapse
Breyanzi makes complete and lasting remission possible. Read the results of the Breyanzi clinical studies.
Breyanzi is a personalized treatment
Breyanzi is not a stem cell transplant or chemotherapy. It is a CAR T cell therapy that uses enhanced white blood cells (T cells) to find and fight cancer. Read more about how Breyanzi works.
There is support available every step of the way
We’re in this together. At each point in their treatment journey—from collection to infusion, and even after—there are support services available. Get personalized support throughout your treatment journey with Cell Therapy 360®.
If Breyanzi is right for your loved one, they will need to stay near a treatment center for a few weeks after treatment. Here are some ways you can support them during this time:
Pretreatment
At this point, your loved one will have gone through apheresis and low-dose chemotherapy and is preparing for their Breyanzi infusion. Here’s how you can help them prepare:
- Recommended items to pack
- Comfortable clothes, plenty of sleepwear, slippers, and socks
- A notebook, books, and magazines
- Headphones and chargers (make sure the chargers have an extra-long cable that will reach their bed)
- Pictures or handwritten notes from loved ones back home
- Reach out for support
Sign up for Cell Therapy 360® and get access to financial support, lodging resources, and a support line for caregivers
During treatment
There are many ways you can help your loved one during treatment, including:
- Assisting with day-to-day activities like refilling prescriptions, scheduling and taking them to appointments, cooking, and helping them with transportation
- Taking on childcare responsibilities
- Accompanying them to appointments, asking questions, and bringing all relevant information with you (like their allergy and medication info)
Recovery
The full CAR T cell therapy process (from apheresis through initial post-treatment follow-up monitoring) can span over the course of 2 to 3 months.
- Assisting your loved one in getting to appointments. Remember, they won’t be allowed to drive for at least 8 weeks after their CAR T cell infusion
- Ensuring your loved one is never left alone for at least the first 30 days. Long-term monitoring is required
- Being aware of potential side effects and understanding what to do about them. If at any time you are unsure what to do or are concerned that your loved one may be experiencing a side effect, call their healthcare team right away.
- Call 911 or their healthcare team in the event of a medical emergency or if they show signs of a serious side effect
- Check their temperature regularly following treatment
- Call their healthcare provider or go to the hospital if their temperature is 100.4˚F/38.0˚C or higher
- Watch for symptoms, side effects, and other changes in their health or behavior
CARE PARTNER AND SUPPORT ORGANIZATIONS
Below are some care partner–specific organizations so you can get the help and resources you need.
Please note, all links are for educational purposes only. Information on these sites shouldn't be interpreted as medical advice. You should always discuss all health information with your healthcare team. All logos, trademarks, and content on external sites are the property of their respective owners.
The Balm in Gilead 
(804) 644-2256
The Balm in Gilead is a Black, faith-based organization dedicated to preventing diseases and improving the health status of people of African descent. They coordinate unique programs and educational resources on diseases for patients and caregivers.
Visit balmingilead.org for more information.
Black Health Matters
(973) 333-9541
Black Health Matters inspires meaningful change for health equity on their website and aspire to improve health outcomes for Black Americans. They provide educational resources and events centered on living with certain health conditions, such as lymphoma.
Visit blackhealthmatters.com for more information.
Blood & Marrow Transplant Information Network (BMT InfoNet)
(804) 644-2256
Since 1990, BMT InfoNet is a nonprofit patient advocacy organization that provides high-quality information, support services, and a network of medical experts and survivors to empower patients and caregivers on their CAR T-cell or transplant journey.
Visit bmtinfonet.org for more information.
CancerCare
(800) 813-HOPE (800-813-4673)
Founded in 1944, CancerCare has been the leading national organization offering free professional support services and educational resources to help patients with cancer and their caregivers manage emotional, practical, and financial challenges.
Visit cancercare.org for more information.
CLL Society is the world’s leading authority for CLL/SLL cancer patients. Focused on patient education, advocacy, support, and research, they provide educational resources and emotional support programs to assure patients they are not on this journey alone.
Visit cllsociety.org for more information.
Cancer Support Community
(888) 793-9355
Cancer Support Community believes that no one can, or should, face cancer alone. They provide highly personalized support, including phone and live chat support, educational resources, and more for patients and care partners nationwide.
Visit cancersupportcommunity.org for more information.
Health Tree Foundation
(800) 709-1113
The HealthTree Foundation is a nonprofit organization that strives for patients and researchers to make informed treatment decisions based on essential data. With Cure Hub, they offer tools for patients to navigate their disease by tracking their labs and more.
Visit healthtree.org for more information.
Lymphoma Research Foundation
(212) 349-2910
The Lymphoma Research Foundation has built a community rooted in research dedicated to eradicating lymphoma. They provide financial assistance with their Patient Aid Grant, educational resources, emotional support, and community connections.
Visit lymphoma.org for more information.
The Leukemia & Lymphoma Society (LLS)
(800) 955-4572
The Leukemia & Lymphoma Society (LLS) is the world’s largest nonprofit health organization dedicated to funding blood cancer research and providing education and patient support, including financial assistance, nutrition consultations, and more.
Visit lls.org for more information.
Share your Breyanzi story
Sharing your story can help others know they’re not alone. If Breyanzi has made a difference for you or your loved one, we’d love to hear about it. Please visit our website or call us at 1-855-436-5866.
While caring for your loved one, don’t forget to take care of yourself
- Make sure you’re getting enough sleep.
- You need to eat and hydrate. Don’t skip meals and make sure you have snacks available for you and your loved one.
- Your emotional and mental health is important. Talk with the healthcare team if you need help with physical or emotional support.
- It’s ok to take a break. Coordinate with friends and family to ensure the patient has around-the-clock coverage while you get the help and support you need.